Champion: Landon Hall

Landon was born April 2012. Soon after his 3rd month check up we noticed that he had the Café-au-lait spots starting to show. With his big sister Delilah, having N1 it was determined that Landon had it as well. As of right now he has no major complications from NF. He is a normal 21 month old little boy who loves toy cars, his puppy dog Gypsy, picking on his sister, and chasing the cat. He also likes playing outside, playing with daddy, and cuddling with mommy.

3 more champs in


Ayden was diagnosed at 8 months with NF and Pseudoarthrosis of the tibia. By 10 months her leg broke while in a brace. At the age of 3 we decided it would be best for her quality of life if […]


My daughter was diagnosed with NF 1 when she was 5 years old. JJ is now 14. She has had 2 brain tumors removed and they are watching the 3rd. JJ was also diagnosed with epilepsy, ADD, has LD’ s, […]


My sweet 4 year old has NF1. He was diagnosed at 8 months due to the severity of his tibial displacia. Shriners Hospital performed a symes amputation (basically the foot and straightened the leg). He loves his prosthesis. He is […]

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