Champion: Natalie

Natalie is a beautiful and brave 4-year-old who was diagnosed with NF-1. Natalie lights up a room upon entering. She has a spirit larger than life. Her laugh is contagious. When you see her walking down the street in her dress holding her purse you cannot keep yourself from smiling. Natalie is monitored closely with vision exams and brain MRI’s because she has tumors called optical gliomas along her optic nerve. We need more research to help amazing brave kids like Natalie!

3 more champs in


Ayden was diagnosed at 8 months with NF and Pseudoarthrosis of the tibia. By 10 months her leg broke while in a brace. At the age of 3 we decided it would be best for her quality of life if […]


My daughter was diagnosed with NF 1 when she was 5 years old. JJ is now 14. She has had 2 brain tumors removed and they are watching the 3rd. JJ was also diagnosed with epilepsy, ADD, has LD’ s, […]


My sweet 4 year old has NF1. He was diagnosed at 8 months due to the severity of his tibial displacia. Shriners Hospital performed a symes amputation (basically the foot and straightened the leg). He loves his prosthesis. He is […]

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