Champion: zachary vitti

Zach is my son and he was diagnosed with NF1 when he was about a year old. He also has CPT of his left tibia (as a result of NF1) and has had corrective surgery as well as a lengthening of his left leg. He is 9 now and is a very brave boy with an awesome personality. I pray for Zach everyday that soon there will be a cure for NF.

3 more champs in


Ayden was diagnosed at 8 months with NF and Pseudoarthrosis of the tibia. By 10 months her leg broke while in a brace. At the age of 3 we decided it would be best for her quality of life if […]


My daughter was diagnosed with NF 1 when she was 5 years old. JJ is now 14. She has had 2 brain tumors removed and they are watching the 3rd. JJ was also diagnosed with epilepsy, ADD, has LD’ s, […]


My sweet 4 year old has NF1. He was diagnosed at 8 months due to the severity of his tibial displacia. Shriners Hospital performed a symes amputation (basically the foot and straightened the leg). He loves his prosthesis. He is […]

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